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When You Share the Same Rare Disease as Celine Dion

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themighty.com

This year is my 25th wedding anniversary, and it also just happens to be the 25th anniversary of Celine Dion’s multiple award-winning song “My Heart Will Go On,” from the movie “Titanic,” the first official date night song and movie my husband and I shared.

The night we both knew without a single doubt we were in love, the kind of love that fears nothing and is unconditional. Love that is joyful, fierce and true, the rarest treasure in the world.

The discovery of the love of my life is not the only coincidence I share with Ms. Dion. We could not know at the time of this first date that I would be diagnosed with the rarest form of stiff person syndrome (SPS) after a 23 year diagnostic odyssey; the same rare, currently-without-a-cure neurological disease Celine Dion also would announce her diagnosis with late last year.

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