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Why I Often Feel Out of Place as an Adult With Congenital Heart Disease

No one wants to be in the hospital. No one wants to think of one as home. Unfortunately, for many people with congenital heart defects/diseases and our families, that’s what hospitals often become, a kind of home. We’d all rather be snuggled in our own beds, watching Netflix and not the hospital-approved programming. But for many adults with CHD, the fluff of the pillows isn’t the problem.

You’re not supposed to like it. It’s a hospital. You’re supposed to heal and go home. But while you’re there, shouldn’t you feel as if you’re in the right place? A place equipped, a team prepared for you? A center that acknowledges your sub-specialty? As an adult, I have been admitted to and visited clinics of both pediatric and adult centers. And there

Family people feelings
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Family: Readers Choice

Why I Often Feel Out of Place as an Adult With Congenital Heart Disease

No one wants to be in the hospital. No one wants to think of one as home. Unfortunately, for many people with congenital heart defects/diseases and our families, that’s what hospitals often become, a kind of home. We’d all rather be snuggled in our own beds, watching Netflix and not the hospital-approved programming. But for many adults with CHD, the fluff of the pillows isn’t the problem.

How to Combine Two Incomes (And Not Kill Each Other in the Process)

When my now-husband and I got engaged, we were repeatedly warned about the three dreaded “Fs” that threatened to wreak havoc in even the most stable relationships: family, faith, and finances. I (foolishly) wasn’t fazed.
How This Video Game Explains My Spoon Theory for Depression

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theeverygirl.com
How to Combine Two Incomes (And Not Kill Each Other in the Process)
When my now-husband and I got engaged, we were repeatedly warned about the three dreaded “Fs” that threatened to wreak havoc in even the most stable relationships: family, faith, and finances. I (foolishly) wasn’t fazed.
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dumblittleman.com
The Future Of Nursing Homes Post-Pandemic
36% of them took place in long-term care facilities. In some states, that percentage was as high as 54%.
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themighty.com
How This Video Game Explains My Spoon Theory for Depression
I often hear talk of spoon theory as a way to explain the challenges of chronic illness. People argue whether mental illnesses also use spoons. One day as I was struggling after using all my energy to walk the dog, I began to think of my energy and mental illness not in terms of spoons but in terms of one of my favorite video games: Chibi-Robo.
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thoughtcatalog.com
Don’t Forget To Feel Alive In This Moment
Privacy Statement.Learn more about Thought Catalog and our writers on our about page.When pimple-like bumps or boils start showing up in areas where skin rubs together, you may question what’s going on with your body. Take the quiz to see if your symptoms may be HS—a chronic inflammatory skin condition that may be linked to the immune system.Please note: This quiz is not meant to diagnose patients with HS.
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everydaypower.com
How do you tell your family you’re going to chase your dreams?
With a text? In person? In an e-mail? By phone? Should you tell certain family members and not others? Should you tell them during a family get-together or one-on-one? Maybe you shouldn’t tell them at all? Or maybe you should only tell the ones who are going to be supportive? Should you wait for the “right time” or spontaneously tell them?
motivation Family personality
marcandangel.com
10 Things to Remember About Toxic Family Members
(NEW BOOK ALERT: This post is a direct excerpt from the Children & Family section of our forthcoming book, “1000 Little Habits of Happy, Successful Relationships“.)Family is supposed to be our safe haven. Sometimes, however, it’s the place where we find the deepest heartache.Letting go of (or breaking up with) a toxic friend, boyfriend, or girlfriend is one thing, and there’s plenty of advice out there for doing so, but what about letting go of a toxic family member?Most of us are not in a position to just walk away, nor do we feel that we want to, or that it’s the right thing to do.
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thoughtcatalog.com
An Open Letter to Sober-Curious People
sobriety. Deeply.
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additudemag.com
What Happens When Our Kids Lose Track of Time — for a Full Year
Pandemic time, we have learned, is a real head trip.The suspension of regular schedules and routines has hit children with ADHD particularly hard. At the same time, fewer school buses to catch and practices to attend has created time for family walks, game nights, and sleep.
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powerofpositivity.com
UPS Promotes Workplace Inclusion, Hires Man With Down Syndrome
his sister Amy Hyde immediately shared the news on social media.She said, “Thank you, UPS, for giving my brother a chance & promoting inclusion in the workforce. Jake has Down Syndrome, but that doesn’t stop him! He loves his new job running packages up to 8 hours per day.
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theeverygirl.com
I’m a Sex Writer—Here Are the 6 Vibrators I’m Trying
When someone asks how I’m doing living alone and being single during a pandemic, I pretty much always mutter something along the lines of, “You know, it’s not all that bad… as long as I keep my vibrators charged.” (That maybe wouldn’t have gone over so well at a larger family Christmas dinner, but perhaps that’s a silver lining.) I don’t mind being alone if I have a little help from some of my friends. And I’m not just talking about the sexual impacts of masturbation (although those are quite nice), but I feel happier, less stressed, and more productive when I treat embracing my sexuality like another piece of self-care.
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thoughtcatalog.com
This Is Me Letting Go Of The Woman I Thought I Should Be
Privacy Statement.Lori Brant lives in Barrie, Ontario where she can be found enjoying the shores of Lake Simcoe during the warmer ...Learn more about Thought Catalog and our writers on our about page.Uncover inner peace and find the strength to move on with this guided journal + healing gift set which includes sage, a white purification candle, and a rose quartz stone.When pimple-like bumps or boils start showing up in areas where skin rubs together, you may question what’s going on with your body. Take the quiz to see if your symptoms may be HS—a chronic inflammatory skin condition that may be linked to the immune system.Please note: This quiz is not meant to diagnose patients with HS.
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thoughtcatalog.com
The Journey To Self-Discovery Featuring My High Heels
self-discovery is surrounded by golden meadows with blooming wildflowers. And high heels have taken me there.
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thoughtcatalog.com
A Love Letter To Anyone Wanting To Break Free From Societal Expectations
If we keep reaching for things that are not giving us true fulfillment, we will eternally be reaching and never receiving. If we keep looking for answers outside of ourselves, we will always be looking and never discovering. From a young age, we are programmed into thinking that there is a life structure we should seek in order to be prosperous—go to a prestigious school, land a lucrative job, work your way up the ladder, find a partner, get married, have kids, and so on.
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thoughtcatalog.com
When You’re Struggling To Feel Okay, Read This
Privacy Statement.Learn more about Thought Catalog and our writers on our about page.Uncover inner peace and find the strength to move on with this guided journal + healing gift set which includes sage, a white purification candle, and a rose quartz stone.When pimple-like bumps or boils start showing up in areas where skin rubs together, you may question what’s going on with your body. Take the quiz to see if your symptoms may be HS—a chronic inflammatory skin condition that may be linked to the immune system.Please note: This quiz is not meant to diagnose patients with HS.
Read This Family feelings
thoughtcatalog.com
I’ve Been Loving Myself All Wrong
Privacy Statement.Learn more about Thought Catalog and our writers on our about page.Uncover inner peace and find the strength to move on with this guided journal + healing gift set which includes sage, a white purification candle, and a rose quartz stone.When pimple-like bumps or boils start showing up in areas where skin rubs together, you may question what’s going on with your body. Take the quiz to see if your symptoms may be HS—a chronic inflammatory skin condition that may be linked to the immune system.Please note: This quiz is not meant to diagnose patients with HS.
Family
themighty.com
Understanding My Dissociative Identity Disorder Diagnosis
It’s like in the movies after a bomb goes off too close to you. When they play that sound bite where it sounds broken with a high pitch that stays until you come back to the present moment. When your vision blurs and the room is moving. It feels like your heart is in your throat that’s closing while your stomach feels like it might either implode, fall out of your butt or maybe you’ll projectile vomit… Then you blink and you’re back to wherever you were, possibly in your chair and the therapist looking at you.
Family people liking
themighty.com
Why EHCP Assessments Should Be Mandatory for U.K. Kids With Down Syndrome
Following a battle to secure the support my daughter needs to be able to access an education, an issue I feel is important to spend some time raising awareness of, and discussing, is the provision of Education and Health Care Plans for children with Down syndrome. Time after time we hear stories of children with Down syndrome being denied an EHCP assessment. This is not in the best interests of any child with Down syndrome and I feel some changes to legislation need to be made.
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thoughtcatalog.com
8 Practical Ways To Start Living Your Best Life In 2021
Privacy Statement.Learn more about Thought Catalog and our writers on our about page.Uncover inner peace and find the strength to move on with this guided journal + healing gift set which includes sage, a white purification candle, and a rose quartz stone.When pimple-like bumps or boils start showing up in areas where skin rubs together, you may question what’s going on with your body. Take the quiz to see if your symptoms may be HS—a chronic inflammatory skin condition that may be linked to the immune system.Please note: This quiz is not meant to diagnose patients with HS.
Family life
themighty.com
A Tribute to My Younger Self Before Mental Illness or Disability
Can you trace back your steps to the moment where everything changed? I’m not talking about the big milestones that were meaningful, I’m talking about the second in which you changed forever. In my case, I can’t. Of course, I can see how family and relationship issues, mental health diagnoses, rheumatoid arthritis (RA), disability and everything shaped the person I am today, at my 26 years. But, I’ve been watching some old family videos, in which I could see myself from 2 to 6 years old, and I couldn’t help but feel nostalgic.
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additudemag.com
ADHD Summer Camps Will Likely Open – Safely and Differently – in 2021
February 24, 2021Summer camp — a universal rite of childhood — feels simultaneously decadent and essential, risky and healthy to many families this year.One year after COVID-19 shut down everything, families are once again wondering how the summer season will shake out and hoping desperately for day and overnight camps to safely open again. Many families stressed by remote and hybrid learning are now seeing specialized camps — specifically those those serving children with ADHD, learning disabilities, and other conditions — as a lifeline and a reset for hopeful campers with Zoom fatigue.Last year, many U.S.
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thoughtcatalog.com
No One Tells You That This Is The Hardest Part Of Your Twenties
Privacy Statement.Learn more about Thought Catalog and our writers on our about page.Uncover inner peace and find the strength to move on with this guided journal + healing gift set which includes sage, a white purification candle, and a rose quartz stone.When pimple-like bumps or boils start showing up in areas where skin rubs together, you may question what’s going on with your body. Take the quiz to see if your symptoms may be HS—a chronic inflammatory skin condition that may be linked to the immune system.Please note: This quiz is not meant to diagnose patients with HS.
Family parting
thoughtcatalog.com
Read This If You Can’t Stop Self-Sabotaging
Privacy Statement.Learn more about Thought Catalog and our writers on our about page.Uncover inner peace and find the strength to move on with this guided journal + healing gift set which includes sage, a white purification candle, and a rose quartz stone.When pimple-like bumps or boils start showing up in areas where skin rubs together, you may question what’s going on with your body. Take the quiz to see if your symptoms may be HS—a chronic inflammatory skin condition that may be linked to the immune system.Please note: This quiz is not meant to diagnose patients with HS.
Family
themighty.com
How My Service Dog Changed My Life
When my disability due to MS progressed to the point where I needed to use a wheelchair most of the time, a friend suggested I should think about getting a service dog to help me. I really had very little idea about how to go about finding a service dog, and so I did what everyone does these days: I started researching online. As I found out about all the different kinds of service dogs that are available, NEADS would come up often in my searches. As a most-of-the-time wheelchair user, the tasks that NEADS dogs are trained to perform seemed most suited to my needs. And I appreciated the high standards to which NEADS dogs were obviously trained. It was a bonus that they were only an hour down the road from my home in Massachusetts.
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lifehack.org
What To Do in Quarantine?
Last year we spent in complete quarantine cut away from the world. Some of us are still in quarantine to this day.
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