Family: recent publications

Why I Often Feel Out of Place as an Adult With Congenital Heart Disease

No one wants to be in the hospital. No one wants to think of one as home. Unfortunately, for many people with congenital heart defects/diseases and our families, that’s what hospitals often become, a kind of home. We’d all rather be snuggled in our own beds, watching Netflix and not the hospital-approved programming. But for many adults with CHD, the fluff of the pillows isn’t the problem.

You’re not supposed to like it. It’s a hospital. You’re supposed to heal and go home. But while you’re there, shouldn’t you feel as if you’re in the right place? A place equipped, a team prepared for you? A center that acknowledges your sub-specialty? As an adult, I have been admitted to and visited clinics of both pediatric and adult centers. And there

Family people feelings
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Family: Readers Choice

No one wants to be in the hospital. No one wants to think of one as home. Unfortunately, for many people with congenital heart defects/diseases and our families, that’s what hospitals often become, a kind of home. We’d all rather be snuggled in our own beds, watching Netflix and not the hospital-approved programming. But for many adults with CHD, the fluff of the pillows isn’t the problem.
When my now-husband and I got engaged, we were repeatedly warned about the three dreaded “Fs” that threatened to wreak havoc in even the most stable relationships: family, faith, and finances. I (foolishly) wasn’t fazed.

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