These days, in the midst of a global pandemic, people are feeling vulnerable, anxious, isolated and, for those who are quarantined, more than a little trapped.
For families like ours, who care for a medically complex child, the impact of what is happening hits hard. Many of us live on the edge day to day, required to manage every moment and aspect of our child’s care in the face of relentless disease.
It is a job that never lets up. We don’t really have a choice. We do it because we have to. We do it because we love our child.
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