people liking feelings

I Am What Ehlers-Danlos Syndrome Looks Like

Receiving a diagnosis for Ehlers-Danlos syndrome is only the first step in what often feels like a never-ending cycle of questions, appointments, tests, more appointments (with long wait times), and then more waiting.

So much waiting… Have I mentioned the waiting? Looking at myself in the mirror the day after my diagnosis, it occurred to me that while I had an answer, a verification, an acknowledgment of my frustrations, I did not look any different.

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