feelings child parents

Finding Your Mantra as the Parent of a Child With a Rare Disease

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Within the first week of our son’s diagnosis with a rare and progressive disease, my husband and I were browsing a Home Goods store.

We were feeling angry, confused, numb and scared whenever we thought about his new diagnosis, and we thought about it most of the time.

While browsing, a sign caught our eye, and after reading it, we knew we had to get it. The sign said, “You never know how strong you are until being strong is the only choice you have.” That sign seemed to speak to both of us and tell us that although the news of our son’s diagnosis seemed completely overwhelming, we would be able to get through it.

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