I am a 23-year-old male living with a rare disease called cystic fibrosis (CF). To make things even more interesting, I am a 23-year-old Black male living with cystic fibrosis who had received a double lung transplant during the spring of 2017.
My CF journey is not too far off from other stories you hear. I was diagnosed a year after birth, as doctors could not figure out what was making me so symptomatic.
At first, they didn’t come to the conclusion that I may have CF because in their view, it was “uncommon” for people of color to inherit such a genetic disease.
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