I was 17 years old when I received a diagnosis of facioscapulohumeral muscular dystrophy (FSHD). It was the end of one long journey and the beginning of another that continues today.
Before my diagnosis, I experienced strange physical symptoms I always blamed on being “unique.” For example, my eyes wouldn’t fully close when I slept.
I had a difficult time drinking from a straw and pronouncing some vowels. I noticed my shoulder muscles were weakening as I played football in high school — so much so I thought I had injured myself.
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