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6 Reasons Why Social Isolation Is Nothing New for My 'Rare' Family

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themighty.com

We have been in strict social isolation now for 157 days. My husband is working full-time at home and I am working part-time.

Our three kids, ages 14, 12 and 9 are home with us. Our youngest son lives with a rare brain disease called vanishing white matter disease (VWM).

He can’t stand, walk or move on his own; he needs help with absolutely every task. We have no home help. His disease causes a loss of white matter, and therefore a loss of motor control, in reaction to stress.

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