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4 Things I Wish I’d Been Told About Living With Ehlers-Danlos Syndrome

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themighty.com

I have Ehlers-Danlos syndrome (EDS), and I’ll be the first to admit, I recognized that I might have the syndrome by seeing a graphic on… Pinterest.

Yeah. I walked into my doctor’s office, hoisting high my iPhone, tapping the screen and saying, “I really do think I probably sound ‘crazy,’ but I really think I have this.” A year and some change from that point, and I was diagnosed by the Mayo Clinic in Jacksonville, Florida.

For those of you who also share the syndrome, you know how little most doctors actually know about it. Today, I’m sharing with you just a few things that no one really warns you about Ehlers-Danlos syndrome.

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