life feelings habits

9 Ways I Manage the Work of Life With Ehlers-Danlos Syndrome

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themighty.com

I have come to think of rehabilitation as my job. Maintaining function for me is a full-time effort. From the moment I wake up in the morning until I go to bed at night, every moment of my day is designed around what my body needs.

I used to snooze my alarm until the last possible second. Often, this meant that I’d hit snooze five or six times, jump out of bed, rush to get ready, and be out the door within 20 minutes.

My day was a flurry of dropping T off at school, driving to work for a full day of meetings and time at my desk, driving home, and maybe having time to exercise or go grocery shopping on the way.

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