Living in 2020 with a condition that changes my physical appearance is tough. I distinctly remember being 14 years old, flipping through my magazines, looking at models and their perfect appearances and bodies — but no disabled representation.
No one looked like me. No one shared the same body type. No one was disabled. There wasn’t a single disabled body in sight. No wheelchairs, no walking or medical aids, no physical differences — nothing.
The lack of representation left me brainwashed, thinking disfigurement and disability was something to be ashamed of. Something to hide.
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