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Surgery Saved My Life, But It's Not a Cure

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In the life of someone with Ehlers-Danlos syndrome (EDS), it’s rare to ever just have one specific treatment or surgery. In my case I actually had multiple surgeries before learning about my EDS diagnosis or what was causing my debilitating abdominal/pelvic pain and digestive issues.

Once I learned about the multiple vascular compressions and that they are also linked to my EDS, I knew I was more at risk, especially with organ damage or failure if I didn’t address them with surgery.

Unfortunately since MALS (median arcuate ligament syndrome), SMAS (superior mesenteric artery syndrome), NCS (nutcracker compression syndrome), MTS (may-thurner syndrome) and PCS (pelvic congestion syndrome) are even more rare than EDS, finding a surgery or.

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