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'Seizure-Free' Life With Epilepsy Doesn't Mean 'Disability-Free'

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themighty.com

As of July 2020, I’ve been 9 months seizure-free. Undoubtedly, that’s the longest time in my life since I was diagnosed. I’ve had epilepsy since the age of 14.

It stems from a condition developed in utero called periventricular nodular heterotopia. In layman’s terms that means in development, my neurons clumped out instead of spiraling out.

The new medication I’m on, Xcopri, has kept grand mal seizures from occurring on a weekly basis. I have received so many wonderful words of encouragement over the past few months.

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