Disability … disabled… chronically ill … challenged … I was born with cerebral palsy, developed epilepsy when I was 2 and had brain surgery at age 12.
Throughout my life I have had hundreds of hospitalizations, imaging tests, and five surgeries in 18 years. In all this time in hospitals, I was rather traumatized by having spent a huge part of my life in a limbo of waiting, expecting, preparing for death — then surviving the unimaginable.
At some point before, and even after my brain surgery, I had what is called psychogenic nonepileptic seizures (PNES). My body, psyche, subconscious ultimately manifested the trauma, stress, survival mode, in a way it knew so well.
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