Doctors refer you for tests. Prescribe medications. Review your labs. But doctors won’t remind you to treat yourself gently, with kindness and patience.
I’ve been living with undifferentiated connective tissue disease for 10 years now, and I’m still learning how to do it. I don’t know if there ever comes a time when you reach the finish line and achieve the “gold star” for figuring it all out.
You just keep figuring it out, moment-by-moment, day-by-day, and wake up the next day, and do it all again. Because so many autoimmune diseases are “invisible,” there’s this tendency to try to act as if we are fine.
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