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Remember People Like Me on Rare Disease Day -- and Every Day
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The 300 million people living with rare diseases seldom receive appropriate medical treatment. Unlike common chronic diseases for which there are often established and constantly evolving treatments and interventions, those with rare diseases largely struggle to cope with symptoms on their own.
This has a devastating effect not only physically, but also, emotionally. Many are often never accurately diagnosed despite dozens of failed attempts and countless consultations with doctors and specialists.
When no empirical data for our symptoms is found, we are given psychosomatic diagnoses of depression, anxiety, and other mental health disorders.
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