Dear Newly Diagnosed Ehlers-Danlos syndrome (EDS) Warrior, Welcome to my world of invisible (and sometimes visible) rare connective tissue disorders.
You are not alone! You may be relieved to finally get a diagnosis, or absolutely horrified to find out that there’s something major at the genetic level causing most of your problems.
You may be in shock and disbelief. On the other hand, you may be overjoyed to finally have answers to all your medical mysteries.
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