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Why the Illumination of Rare Is So Important

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Rare conditions can affect anyone, at any time, anywhere. Geographic location, economic status, education, and gender; none of these things preclude any global citizen from being affected.

As a patient with Ehlers-Danlos syndrome, mast cell activation syndrome, POTS, breast cancer, lymphedema, and C-PTSD, I can say that rare found me.

Rare is often isolating and can make an individual feel cut off and segregated from the world that surrounds them. For the rest of the world, rare is often an attribute to be coveted.

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