Recently, people with rare and/or invisible illnesses are gaining more recognition and finding community on social media. On TikTok, creators can connect using the hashtags: #spoonie, #eds, #pots, #zebra, among others.
They share advice, send each other encouragement and generally show how strong and resilient they are. But there’s one message that seems to be repeated, over and over, that feels like a kick to the gut for me — “I’m not crazy.” Many people with rare or invisible illnesses will tell you it can be very difficult to get the right diagnosis and treatment.
I empathize — I have a couple invisible (physical) illnesses. I know it can be frustrating and exhausting to try to find the right doctor and get the necessary tests.Read more on themighty.com