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Why It Took 43 Years for Doctors to Diagnose Me With Ehlers-Danlos Syndrome

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themighty.com
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I have known for years that I have hypermobility and Ehlers-Danlos syndrome (EDS) — ever since I fell down an internet rabbit hole in search of an answer to why my body is in pain and keeps fighting itself.

I found the answers to a lot of my health questions but needed to go to a doctor to show a professional what I was seeing instead of treating each new “thing” as an individual condition.

I have various autoimmune diseases and fibromyalgia. These are the only things a doctor has seen when I’ve complained of a new symptom, and these are the conditions they “blame” for my symptoms.

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