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Why I Struggled to Accept That I'm Disabled By Dercum's Disease

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themighty.com

I have a debilitating condition called Dercum’s disease where lipomas grow under my skin and cause nerve and muscle pain. I’ve had this for almost 20 years but only recently accepted that I am disabled.

Dercum’s is not actually a disease, it is a syndrome that cannot be cured. Because it is rare, few doctors know how to help.

I tried to have a positive attitude and keep moving, even while in pain, but the real reason was I didn’t want to admit that I have a life-changing condition.

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