Paul M.Quinton Usa Canada people personality life Paul M.Quinton Usa Canada

Why Does a Book About My Illness Assume I'm Not Reading It?

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The sentence struck me, a person with cystic fibrosis reading a history of cystic fibrosis. “As you and I sit here,” the author wrote, “breathing with normal lungs…” Such a casual assumption, from a writer who acknowledges her own lack of experience with the disease.

People with cystic fibrosis (CF) don’t have normal lungs, that’s true. Thanks to our body’s issues with thick mucus, our lungs too easily foster bacteria, setting off progressive cycles of infection, inflammation, and cumulative airway damage.

CF destroyed my own to the extent of needing a double-lung transplant. The author describes all this with a science writer’s accuracy.

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