If you have a rare disease, the COVID-19 pandemic can come with extra risks and challenges. From immunosuppressant medications, getting in touch with specialists and different pharmacies, as well as information overload, it can be overwhelming.
When I read the news, most of the guidance aimed at the public is so general; I wonder when it applies to me and when it’s not enough to stay safe.
It’s too early to tell how the coronavirus (COVID-19) can affect people with rare disease, but you can stay informed with resources that speak to your needs as someone who is rare.
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