Best Topics
all Family people parents
Today articles
Related Articles
More ...
Family people parents

When People Judge Me as the Parent of a Child With a Rare Disease

Family people parents
Reading now: 434
themighty.com
themighty.comthemighty.com:

One of the harder things that I have had to learn to deal with since becoming a parent of a child with a rare disease is that of judgment.

I have felt (real or perceived) judgment from family, friends, other parents of kids with disabilities, therapists and strangers.

I know all parents probably feel judged for their decisions at some point, but I think it goes to another level when you are a parent of a rare disease or medically complex kid.

Read more on themighty.com
All news from themighty.com
The website mental.guide is an aggregator of articles from open sources. The source is indicated at the beginning and at the end of the announcement. You can send a complaint on the article if you find it unreliable.

Related articles

themighty.com
92%
323
What You Need to Know About Life With Psoriatic Arthritis
You’ve probably heard of arthritis, and you may be familiar with psoriasis. But did you know there is a condition called psoriatic arthritis? People living with PsA can have the rash of psoriasis, along with an accompanying form of arthritis. It is a lifelong condition, which affects about 1.5 million Americans. I have been living with PsA for more than 12 years. Here is what you need to know about life with PsA.
Usa people life affection
curiousmindmagazine.com
78%
667
Why Taking Care of Your Gums Is Important
Periodontal disease (periodontitis, or gum disease) is a painful condition that is relatively common and can lead to tooth loss. Taking care of oral health is very important in the prevention of this painful and disfiguring problem. Learning how to protect your gums is the best way to combat the formation of gum disease.
people feelings affection
thoughtcatalog.com
38%
768
Life Is A Journey Of Continually Letting Go
we have come to define ourselves through? That is, the stories, beliefs, values, and expectations through which we see the world and through which our lives are based on and defined.As we begin to question our lives and everything that we have, we don’t make the connection because ‘it’s just who we are’ and ‘it’s just how life is’. We submit ourselves to the stories, beliefs, values, and expectations we absorbed when we were younger and unconsciously carry out our lives according to them.We struggle because really and truly, these stories, beliefs, values, and expectations are not our own.
people life feelings
thoughtcatalog.com
90%
297
An Open Letter to Sober-Curious People
sobriety. Deeply.
Family people life
themighty.com
59%
730
When Trauma Doesn't Give You Thick Skin
We’ve all heard the saying “What doesn’t kill you makes you stronger.” While it can be affirming for many, it also tends to establish a false narrative of what trauma survival looks like. There’s a societal belief that traumatic experiences make people cold, thick-skinned and hardened. However, in my personal experience and from talking with countless other people, trauma most often can leave us feeling vulnerable, sensitive and more afraid.
people personality feelings
themighty.com
64%
162
RA Myths You Shouldn't Believe
You don’t look sick. 
people affection fight
thoughtcatalog.com
42%
838
3 Reminders To Help Ground You When You’re Experiencing Social Anxiety
just talk to people, being around them began to stress me out. It stressed me out so much that I wasted all my energy on being stressed out and spent none of it on being in the moment. People became triggers for my panic attacks. I became the person who couldn’t wait to close with “Well, it was good to see you.” I truly, sincerely dreaded being around people.
people feelings stress
success.com
93%
251
30 Empowering Quotes for Women’s History Month
“Owning our story can be hard but not nearly as difficult as spending our lives running from it.” — Brené Brown“If you don’t see a clear path for what you want, sometimes you have to make it yourself.”— Mindy Kaling“I think beauty comes from actually knowing who you are. That’s real beauty to me.” — Ellen Degeneres“If there’s one thing I’ve learned in life, it’s the power of using your voice.” — Michelle Obama“Know what sparks the light in you so that you, in your own way, can illuminate the world.” — Oprah Winfrey“If you truly pour your heart into what you believe in, even if it makes you vulnerable, amazing things can and will happen.” — Emma Watson“Nothing is impossible, the word itself says ‘I’m possible’!” — Audrey Hepburn“The most
Mindy Kaling Michelle Obama Ellen Degeneres Oprah Winfrey Emma Watson Audrey Hepburn happiness people beauty
lifehack.org
70%
844
How To Make the Right Career Choice After 30 And Succeed
It’s not a big deal then, because you’re not locked into a professional path. What happens, though, when you want to make a career change later? Are you stuck at 30 with the career choice you made at 20? Not at all.In fact, plenty of people make minor and significant career power moves after adulting for a few years.
people confidence Career Success
themighty.com
51%
127
Dealing With Other People's Reactions When Sharing Your Diagnosis
I’ve sometimes felt the sting of invalidation, from family, “friends” and people from work and/or school when I tell them about my bipolar disorder. I cautiously walk the tightrope of confiding in others, afraid to slip into the “asking for pity” territory — which I’ve been told doesn’t exist (but the change of tone in some situations tells otherwise).
people liking feelings
additudemag.com
84%
871
Dating with ADHD
Home › Welcome to the ADDitude Forums › For Adults › Relationships › Dating with ADHDTagged: datingIs there anything available on dealing with being in and out of focus on a person in a relationship? I have put this difficulty down to them never being the right person but the only people I have dated that seem to keep my attention fixated have not been healthy relationships.Most literature I seem to find is focused on either dating someone with ADHD, struggling with the dis-organised or hectic sides of ADHD or it is to do with marriage.I am emotionally erratic, or emotionally redundant depending on some joke timeline from a lunar calendar formed by a Demi-god my unconscious restlessness constructed in my subconscious during this essential
people personality relationship
everydaypower.com
42%
480
7 Ways to Simplify Life and Focus on What Matters
About 6 years ago, I donated 15-20% of my belongings to charity. It was a very freeing and cleansing experience. I still have my fair share of belongings, but I try to be more thoughtful about what I add to my belongings.
motivation people life
everydaypower.com
71%
330
5 Habits That Are Destroying Your Confidence
Self-confidence is a fickle thing. While it seems like some have it in tremendous amounts, and others barely have any at all, the truth is typically somewhere in the middle.
motivation people negative
dumblittleman.com
80%
985
How To Overcome Burnout And Stay Motivated
Statistics show that almost two-thirds of employees deal with burnout once in a while.Even if you’re working from home (which is the setup of most people during the pandemic), you’re still not exempt from stress and exhaustion.
people tips stress
themighty.com
84%
861
The Art (and Science) of Coping with Cancer
Three young cancer survivors reflect on how their professional expertise helped them to navigate through and beyond treatment.
people life feelings
positivityblog.com
82%
673
67 Empathy Quotes to Help You Live a Kinder and More Compassionate Life
And if you want more inspiration then check out this post with quotes on overcoming adversity and this one filled with thoughts on inner peace.“Don’t criticize what you don’t understand, son. You never walked in that man’s shoes.”Elvis Presley“Self-absorption in all its forms kills empathy, let alone compassion.
people personality life
positivelypositive.com
90%
525
Money Mistakes Are Temporary
we are irrationally afraid of losing. We would rather give up the chance to win big than deal with the likelihood of small losses.“Irrationally afraid” is the key point, especially when it comes to money.
people liking life
themighty.com
45%
341
4 Practical Ways Men Can Manage Their Anxiety
When people say they have anxiety, what does it mean? Well, it usually means they have some ongoing fears or challenges in their life, but ultimately, they are saying they have stress and their body is reacting to it. Something in their lives has temporarily stressed them to the point it is affecting their lives.
Can Manage Their people liking men
themighty.com
65%
501
Disabled People Have the Right to Be Heard
For the past month, I’ve been privileged to volunteer my Saturday afternoons working in a COVID vaccine clinic. Specifically, I work in the observation room telling people why they have to wait, giving them 15-minute timers, and wiping down tables and chairs when they leave. Our location gave around 100 shots in the four hours I was there this past Saturday – six appointments every 15 minutes. We are busy and there is rarely time to rest.
people personality emotions
themighty.com
46%
882
13 Misconceptions About Having an Ostomy
There are a large number of misconceptions around ostomies. I want to help educate those who don’t live with one and/or may need one in the future. I had one between 2017-2018 and it was a new and challenging experience. So hopefully this can help some people.
people life Sex
themighty.com
52%
668
5 Digital Dating Tips for People With IBD
Before the dating world was about swiping right or left, I met my husband online. It’s something I was a little embarrassed about sharing for a long time, especially while being a morning news anchor. The year was 2013, and while online dating was becoming more common, it was still a little taboo. At the time, my Crohn’s disease was a secret from the public. Much like the backstory of my health, I wanted to keep my love story under wraps.
city Springfield liking personality feelings
themighty.com
80%
483
How Do You Cope With Knowing Your Child Has a Terminal Disease?
I get asked daily, “how do you cope knowing Carter is terminal?”
people friends child
addicted2success.com
69%
435
7 Characteristics of the Most Confident People in the World
Do you consider yourself one of the people with little confidence in themselves? Did life and situations make you lose faith in yourself? Do you still carry on your back the criticism of others or their bad treatment of you? If your answer is yes, then you came to the right place.Self-confidence means that your inner world is safe, that you believe in your abilities to achieve success in life, and that you believe in your unique qualities and the way you judge things. And confidence is like a muscle that one can gain and develop over time.
confidence how to be confident develop confidence
thoughtcatalog.com
91%
426
If You Have Been Ghosted — This Is How You Heal And Move On
why? Why do we treat one another like this?The truth is, when we look at the way we are dating within this generation, when we look at the almost consumerist approach we have taken towards creating connections, and meeting human beings, it really illustrates this reality where there is this loss of value in a connection with an individual person. And what I mean by that is, when you are inundated with options, and choices, and you have the capacity to almost shop around at all times, when you have access to all of those human beings, to all of that potential, the value of each option is diminished.
people personality feelings
powerofpositivity.com
39%
472
UPS Promotes Workplace Inclusion, Hires Man With Down Syndrome
his sister Amy Hyde immediately shared the news on social media.She said, “Thank you, UPS, for giving my brother a chance & promoting inclusion in the workforce. Jake has Down Syndrome, but that doesn’t stop him! He loves his new job running packages up to 8 hours per day.
Amy Hyde Family people life
everydaypower.com
65%
828
56 Barbara Bush Quotes for Understanding the Complexities of Life
Barbara Bush, former first lady and wife of George Bush has had some wise things to say throughout her life. These Barbara Bush quotes will show you her strong opinions, values, and life experiences.
George Bush Barbara Bush people life Quotes
everydaypower.com
40%
787
60 Batman Quotes From the Wise Dark Knight
He defends Gotham City from criminals, and often we wish there was someone real like him to save us from all the evil that surrounds us. Bruce Wayne took the pain of his parents’ death as the fuel to turn him into the Batman. These awesome Batman quotes are wise and thought-provoking and will make you wish we had a beacon in the sky to send him to save us all.
Bruce Wayne city Gotham people fears Quotes
everydaypower.com
84%
845
60 Brilliant Marketing Quotes to Boost Your Business
These inspirational quotes will transform the way you think about marketing and business strategy.
people liking Quotes
everydaypower.com
87%
435
60 Andrew Yang Quotes From Former 2020 Democratic Candidate
After co-signs from celebrities such as Joe Rogan and Donald Glover, American entrepreneur and lawyer Andrew Yang’s 2020 presidential campaign blew up practically overnight. Below are Andrew Yang quotes that illustrate the former presidential candidate’s upbringing, societal views, and business know-how. 
Joe Rogan Donald Glover Andrew Yang Usa Taiwan people liking Quotes 2020
powerofpositivity.com
64%
225
Mercy Chefs Served Thousands of Hot Meals to Texans During Storms
Dallas, Texas, they provided disaster relief in Alabama after a devastating tornado struck the suburbs of Birmingham. In the past, they’ve also helped communities recover after hurricanes, floods, and other natural disasters.The nonprofit began in 2006 when founder Gary LeBlanc witnessed the destruction in the aftermath of Hurricane Katrina.
Gary Leblanc state Texas city Birmingham state Alabama city New Orleans people liking life
themighty.com
53%
316
How People With Chronic Illness 'Stay Strong' (and It's Not Because 'We Have to')
As a person with a few chronic illnesses, I have often been asked the same questions — questions I am sure most with chronic illness have been asked.
people life friends
themighty.com
48%
705
How I Became Comfortable Disclosing My Stutter
“What’s a piece of advice you would give to your younger self?”
people personality parting
powerofpositivity.com
88%
159
Volunteers Save Thousands of Sea Turtles from Winter Storm in Texas
Sea Turtle Inc called for help to rescue the sea turtles. People all over south Texas started showing up, offering to do whatever they could to save the helpless creatures.
Winter Storm state Texas people presents BAY volunteers
curiousmindmagazine.com
89%
555
Beginner’s Guide to Astrology’s 4 Elements: Fire, Air, Earth & Water
Some people believe strongly in astrology and use it to guide certain decisions in their lives. For others, there is very little understanding about how it works and what things like zodiac signs are based on. Astrology is based on the belief that the universe is made up of four elements, and they can be applied to a wide variety of things, such as personalities, by using analogy and similarity principles.
people personality emotions
curiousmindmagazine.com
38%
305
What are the Benefits of CBG for Better Health?
Cannabigerol or CBG is evolving as the most sought-after natural remedy offering relief from pain and suffering due to many common ailments. Cannabigerol or CBG is different from cannabidiol or CBD, though both are recommended to alleviate pain. The Cannabis plant consists of over 100 cannabinoids, and CBD is one of them. Today, CBG products are recommended as they are THC-free and offer relief from many chronic conditions with no significant side effects.
people liking affection
curiousmindmagazine.com
94%
807
Benefits of good customer service
When you wish to buy something you always wanted you to feel excited about that. After entering a market, the first thing that you do is to look for the thing that you wanted to buy. You look for other options and when there is a sale, you feel happy. Imagine entering a store where you are looking for something and no one is there to guide you or show you the stuff that you are looking for, how will you feel? That is the role which is crucial for shopping, played by the salesperson. If you find a kind customer service executive or representative, you feel eager to shop, and sometimes their behavior makes you buy more. 
people feelings positive
curiousmindmagazine.com
87%
123
Why People are Turning to Hemp for Pain Relief
Hemp seed oil and CBD oil aren’t the same things even if they’re derived from the same plant. Both are extracted from the cannabis sativa plant which also gives us marijuana, but neither CBD oil nor hemp seed oil has psychoactive properties. Variations of both hemp seed oil and CBD oil are available in all of the 50 states.
people liking mindfulness
curiousmindmagazine.com
69%
487
Everything you need to know about the Nike LeBron Sneaker Lineup
James LeBron is a great basketball player. Being a celebrity player, he acts as a brand. He is well known, so people follow his social media pages.
James Lebron Nike Lebron people liking celebrities
positivelypositive.com
81%
308
The Importance of Making Fitness a Part of Your Self-Care Routine
invest in our health both mentally and physically.For me, salvation was in the way I pushed my body in training. I’m not saying that you should become a professional athlete to be able to cope with the pandemic and other life challenges, but I am saying that fitness is a powerful way to heal and cope.Now, I’m not going to lie to you or myself and tell you that fitness came like second nature to me, because it didn’t and if it did, I’d have nothing to share with you.
people parting life
themighty.com
89%
273
Mental Health Takeaways From the New Billie Eilish Documentary
I admit it, I’m one of those people who was late to the Billie Eilish party. I had never even heard any of her songs until the 2020 Grammys, when she swept nearly every category she was nominated in, garnering her a total of five awards and catapulting her to international stardom. After that, I purchased her album and was impressed with her unique style, raw expression of emotion and the uninhibited look she presented to the world. I liked her but wouldn’t have called myself a huge fan. 
Billie Eilish people feelings parents
themighty.com
51%
331
How the Gym Changed My Expectations About Life With a Disability
“I can.”
people life feelings
powerofpositivity.com
67%
469
15 Michael Jordan Quotes That Show Why He’s Still Considered the Best
greatest of all time. While he doesn’t play basketball professionally anymore, many people still believe him to be the best.
Michael Jordan Jordan people life positive
themighty.com
90%
684
The 2021 Paralympics Are Coming to Prime Time
After an especially long wait for this summer’s Olympics and Paralympics, this year’s games will be historic in more ways than one — for the first time ever, the Paralympics are coming to prime time.
Sarah Hirshland Usa city Tokyo people feelings celebrities
everydaypower.com
66%
844
55 Kofi Annan Quotes On Leadership, Education and Rights
Our latest collection of Kofi Annan quotes on Everyday Power Blog.
Kofi Annan U.N.Secretary Ghana people life Quotes
everydaypower.com
44%
780
60 Inspirational John Wooden Quotes on Life and Leadership
Our latest collection of John Wooden quotes on Everyday Power Blog.
Usa state California Los Angeles, state California people life Quotes
themighty.com
93%
640
Why Rare Friends Make the Best Friends
“When Hadley first started kindergarten I kept hearing about a good friend she had at school. I didn’t know anything about her, but when I saw her parents at curriculum night, I jumped at the opportunity to introduce myself! A year and a half later, not only has Hadley made a great friend, but Bryan and I also did! Little did we know… they were traveling the rare disease road as well. Even though Hadley and Shelby do not have the same rare disease, we have found many similarities in our stories about figuring out life for a child with a rare disease.” –Brie “When I wou
life friends parents
powerofpositivity.com
92%
791
20 Habits That Make It Easier to Improve Your Concentration
National Institute of Health, more than four percent of the adult population in this country suffers from attention deficits.Though ADHD is often thought of as a children’s issue, many kids never outgrow the problem. A child who has severe attention problems can turn into an adult with attention deficit problems.
people habits mindfulness
powerofpositivity.com
95%
655
10 Things That Happen to Your Body When You Quit Vaping
regular cigarettes, pipes, cigars or USB sticks, or other normal-looking items like coke cans, a game boy, or a perfume bottle.Some of these ingredients are only meant to be eaten but not inhaled. Plus, when you heat these ingredients, there is a chemical reaction that isn’t healthy for you to breathe.
people liking feelings
Latest Articles
Main Page
How to entertain yourself when you stuck inside due to a pandemic
8 Ways How to Protect Yourself During Police Interactions
5 Essential Tips for Improving Your Sleep
10 Hard Realities that Actually Help Us Grow in Life
How To Get The Most Out Of Your New Keto Diet
How to Start Speaking Up: Find Your Voice and Be Heard
About Us

Mental.guide is your guide in the world of psychology. In our online-journal you will find answers to many questions: how to overcome stress and depression, how to control your worry, how to manage anxiety and phobia, how to start loving and respecting yourself and many others.
Here you will get pieces of advice from the psychologists who will help you understand yourself better and start living in a harmony with this world around. Everyday updates are waiting for you here. So, if your feel upset, depressed and worried our psycho guide is ready to help you! We are your online help that is always at hand.

Owner: SNOWLAND s.r.o.
Registration certificate 06691200
Address:
Snowland s.r.o.
16200, Na okraji 381/41, Veleslavín, 162 00 Praha 6
Czech Republic

Categories
Info
For advertisers
Add Post

©2024. All rights reserved.

DMCA