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When My Rare Diagnosis Didn't Fully Explain My Symptoms

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I have a benign brain tumor which is called an acoustic neuroma, or vestibular schwannoma if you want to be fancy. It’s a rare tumor.

One person in 100,000 will be diagnosed with an acoustic neuroma in any given year. Picture the biggest college football stadium in the U.S.

See all those people? Just one will be the unlucky one diagnosed with an acoustic neuroma. It was 2010 when I was diagnosed and I was 33 years old.

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