Rare diseases never take a break — even during a pandemic. Hospitals, instead of homes for healing, have become “houses of horror” for many patients like me.
There are times when I’m in desperate need for medical care, but terrified to go because I am immunosuppressed. This puts me at an increased risk of catching and likely not surviving COVID-19, a coronavirus that can cause severe respiratory infection as well as a variety of other symptoms.
But it was on a night full of fear, coughing and wheezing, my lungs felt like they were being gripped by an anaconda, where I definitely gained an even greater appreciation for those who are on the front line of this pandemic.
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