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When a Kid's Birthdays Are Extra Special

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themighty.com

If you have children, you know every month they ask, “is it almost my birthday?” Of course, some parents dread this question weekly, but for me, I would give anything to have my son ask me this very question.

Thirteen days before our son Carter’s fourth birthday, he was diagnosed with a devastating disease called Sanfilippo syndrome.

The best way to describe Sanfilippo is that it’s a childhood version of Alzheimer’s that will take his ability to remember people, places, and things.

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