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When a Chronic Illness Advocate Passes Away

Last week, the chronic illness and rare disease community lost one of our own. She was a bright and beautiful soul who gave her life to advocating and raising awareness for those living with complex conditions.

She was the reason many got diagnosed with Ehlers-Danlos syndrome and related conditions. The informative, uplifting, yet real and raw content she bravely shared touched the lives of many.

For myself and many others, she was a friend who brought comfort in a world of chronic illness that not many can empathize with through lived experience.

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