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What to Do (and Not Do) When Your Loved One Gets a Diagnosis

Here’s the thing you must remember when your loved one gets a new diagnosis — their reaction will be complex, and you will definitely not understand everything they’re experiencing.

This is especially true if they’re diagnosed with a poorly understood, chronic and/or stigmatized condition, like dysautonomia.

Before an official diagnosis, your loved one may have seemed all-consumed by their search for answers. And during that search, they probably heard things like their symptoms are “all in their head,” or “they’re too young to be that sick,” or any other number of dehumanizing and dismissive comments.

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