people personality feelings

What They Don't Tell You About Having a Rare Disease

themighty.com

“You’re a rare bird,” they say. “A few thousand people in the world have what you have.” That’s all they tell me, the best clinic in the world.

There’s no way to stop the symptoms and ease the pain, because nobody yet has cared enough to look for a cure. “Orphan diseases,” it’s explained to me, are conditions that affect less than 200,000 people worldwide.

I have more than I can count on my fingers, but. There. Are. No. Cures. It’s what they don’t tell you about unique, chronic illness that you have to learn the hardest way.

Read more on themighty.com
The website mental.guide is an aggregator of articles from open sources. The source is indicated at the beginning and at the end of the announcement. You can send a complaint on the article if you find it unreliable.

Related articles