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What Receiving My Ehlers-Danlos Syndrome Diagnosis Really Felt Like

people liking personality parting life feelings stress
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“You’re not a hypochondriac. This is real.” This quote accompanies several emotions varying with the moment each time it crosses my mind.

Receiving a diagnosis after many years of unexplained conditions comes with a surreal feeling. Wes and several others asked me how I felt finally knowing, and the truth is… I’m not really sure.

The geneticist appointment originally had a six month wait. Six months, you guys. We shouldn’t be waiting six months for appointments with specialists, but what can we do when there aren’t other options?

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