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What My Family and Friends Want You to Know About Mal de Debarquement Syndrome

themighty.com

June is the month to raise awareness for mal de debarquement syndrome (MdDS), a rare chronic invisible illness that leaves its patients feeling in a state of constant motion.

I could write a story using statistics and my experiences to help others learn about this rare disease, but I thought I’d take a different approach this year.

Rather, I asked my care team, my friends, my family, my students and those who see me live with this illness to share what they have come to see knowing me, a person who lives every day on the boat ride that never ends.

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