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What It Means to Advocate for the Down Syndrome Community

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Getting Started I remember when our son was born and we came home from the hospital. It was hard at first to let people know our new baby was born with Down syndrome.

I’ll never forget how horrible I felt when our older neighbor didn’t understand any of my attempts to describe trisomy 21. I ended up muttering the R-word under my breath to try to get him to understand.

I wasn’t equipped to handle that situation. I’m still embarrassed to this day about that moment. I’m writing this piece to help others become advocates themselves.

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