Dear Doctors: We come to you for help. We come to you already scared, frustrated, anxious. We don’t need any additional negativity added to us.
What we don’t need is for you to medically gaslight us. That’s not acceptable. Not in any way. We know that as a rare disease patient, or a chronically ill patient, we can be complex.
We already know this. We don’t need reminding. Many of us struggle with being heard. Unfortunately too many of us have been dismissed, belittled, ignored.
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