Family people affection fight

What I Want to Tell Others Fighting This Rare Liver Disease

Reading now: 780
themighty.com

I was diagnosed with progressive familial intrahepatic cholestasis (PFIC), a rare liver disease, when I was 4 weeks old. PFIC is an ultra-rare condition that worsens over time and affects about one in every 50,000 to 100,000 live births worldwide.

At the time of my diagnosis, there was little research or understanding, and this was very scary. My family watched the gradual onset of pruritus, a hallmark symptom of PFIC that causes insatiable itchiness.

As my motor skills developed, my scratching worsened, and I would itch my skin until I bled. I underwent my first surgical intervention, a biliary diversion, when I was 6 months old.

Read more on themighty.com
The website mental.guide is an aggregator of articles from open sources. The source is indicated at the beginning and at the end of the announcement. You can send a complaint on the article if you find it unreliable.

Related articles

DMCA