I was diagnosed with lupus nearly five years ago now. I had thousands of dollars of tests, labs and visits. So many hours, so many sleepless nights not knowing why I felt so awful.
I was referred to a rheumatologist who insisted, despite all evidence to the contrary, that is must be anxiety. I left that appointment in tears.
All of the relief of at least having named what was wrong with me was stolen. I saw a second rheumatologist. She told me the symptoms of the medication could cause issues when I am much older, so she would not prescribe it.
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