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What I Didn't Know Before My Son With Spinal Muscular Atrophy Had Spinal Surgery

feelings sadness weakness
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I didn’t know that I wouldn’t be able to pick you up again. I didn’t know that your body wouldn’t bend. I didn’t know that my upper arm strength was so weak.

I didn’t know that spinal surgery would change everything, not just the shape of your frame. I didn’t know it would be the last day I held you in my arms.

I didn’t know I wouldn’t dance with you again to silly songs. I didn’t know it would stop you from sitting in my lap. I didn’t expect everything to change in an instant.

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