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What Getting an Ehlers-Danlos Syndrome Diagnosis Meant to Me

themighty.com

As you may or may not be aware, this is Ehlers-Danlos Syndrome Awareness Month. This blog idea has been rattling around my brain for a while.

I thought to coincide with the awareness month, I would try and get this written for you, dear reader, and myself. I hear a lot of talk amongst the medical and health professionals about people pushing for a diagnosis.

This is being portrayed as a negative thing to do, particularly for individuals like myself who look perfectly fine but are struggling.

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