I have lived with chronic pain from dystonia, a neurological movement disorder, for 20 years. When it first began in 2001, it completely changed my life.
I had to stop everything I was doing and rearrange my life to accommodate my symptoms. In many ways, I lost everything due to severe disability, having to start all over again from scratch, which took years to find the right treatments and self-care puzzle pieces for me.
Being as healthy as possible then become a major focus of my life. Despite improvements to my health, I still deal with problems and continually have to adapt to adversity and change.
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