My younger brother, Mickey, has severe physical and intellectual disabilities, including cerebral palsy, a rare genetic disorder that is closest to Phelan-McDermid syndrome, multiple other genetic mutations, being on the autism spectrum, having severe sensory issues, a GI tube in his stomach because he aspirates, and more.
From the minute he was born, I was so excited, yet terrified. I had no idea all of the special things his chromosomes decided to do, so I decided I would go to every therapy and doctor’s appointment I could.
I wanted to help in any way I could, and this was the only way I knew how. My stepmom and dad were so patient with trying to teach me everything they could and make it understandable to me, since I was only 12 at theRead more on themighty.com