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To the Neurologist Who Diagnosed My Son With SMA Type I

liking life parents
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themighty.com
themighty.comthemighty.com:

Twelve years have passed since my son’s Diagnosis Day (D-Day). However, I remember you for many positive reasons beyond that nightmarish moment in time when you told my husband and me about the terminal and degenerative condition called spinal muscular atrophy (SMA) type I that altered our lives forever.

Because of your initial guidance on D-Day, I am the parent and advocate that I am today. You showed me early on how to take control of a seemingly hopeless situation.

First, by allowing me to grieve the loss of what might have been regarding my son’s future. Then, by helping me focus my time and attention on the things I could pursue to improve my son’s overall quality of life.

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