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To Parents of Children With HIE, From an Adult With HIE

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themighty.com

The news that your child has sustained brain damage can’t be nice to hear. You probably imagine all sorts of horrible scenarios and maybe you looked up your little baby’s condition and got here.

I wouldn’t know about that bit. But I’m writing this to let you know that those worst-case scenarios you’ve read about probably won’t come true.

Like half of babies diagnosed with hypoxic ischemic encephalopathy, my condition is mild. It wasn’t (and isn’t) always easy.

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