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'This Is Not MS' -- How Four Words Changed My Life With a Rare Disease
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Nine years and three neurologists — this is what it took to get my diagnosis correct. I experienced dizziness and pain in my eye, was unsteady on my feet, and lost hearing in one ear.
I have neuromyelitis optica spectrum disorder (NMOSD) — a rare, lifelong, and debilitating autoimmune disease of the central nervous system that primarily damages the optic nerve(s) and spinal cord.
But for nine years, my life was at risk because of an incorrect diagnosis of multiple sclerosis (MS). I tried numerous — often painful — therapies to treat a condition I did not have.
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