If someone were to ask me what has changed most for me since having a child with a disability, I could sum it up in one word: time.
That’s it. It’s time. The way I think of it, the way I use it, the way I value it. It has become my most precious commodity, a cross to bear, a penalty to pay and a gift to give.
There are days you spend wishing it away. Counting down the hours until a particularly stubborn toddler can be put to bed. Multiplying minutes by milliliters as you attempt to get valuable ounces of milk into your newborn.
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