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The Road to a Rare But Real Diagnosis

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themighty.com

It was a test the doctor wanted to run, as it often was found in patients he treated, and could be the cause of the diagnosis I was seeing him for.

Or at least one of them. It was noninvasive, an ultrasound. I thought that surely I didn’t have it, and didn’t fully understand what it was, but given I was sure I didn’t have it, I didn’t bother to look much.

The results came back elevated, indicative of the condition, so he sent me for more tests, to which I had to pre-medicate because of contrast dye allergy precaution.

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