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The Question We Ask as Our Children With Disabilities Grow

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Each year, I email my sons’ teachers to give an overview of their congenital muscular dystrophy (CMD). I explain the differences they can expect to see in their abilities, their need to take breaks and rest, and our parental expectation that they try everything.

I ask the teachers to inform us of any changes they may see over the course of the school year and any problems in their ability to participate in classroom activities.

I invite them to be part of our team. Then, throughout the year I volunteer in their classrooms and establish relationships with their teachers.

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