In my experience, the hardest part about being the parent of a child with a disability is the constant pushback and resistance from the institutions that are tasked with accommodating and supporting your child.
There are both short-term and long-term costs to all involved; including the schools and teachers. Like slow-moving geological forces, the pressure and strain of an inflexible, archaic, and inherently conflicted system will, over time, change you.
It is inevitable. It has changed me for sure. In “Thirteen Doors,” I open one of my chapters by quoting Elizabeth Kubler-Ross, “Should you shield the canyons from the windstorms you would never see the true beauty of their carvings.” It is a positive spin on how adversity can be
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