I have not written a blog since my surgery; I have journaled and that has helped, but that format is very different. I tried to write blogs multiple times, my phone is filled with incomplete sentences and ideas never followed up on; but, I have not been able to write about much in this setting other than this experience.
I have been absolutely unable to find any supports online, regarding this specific, rare diagnosis. I will start sharing the basics thus far, the physical stuff, the science behind what is happening, but then I will write about the cloudy areas, the gray areas and the emotional stuff nobody gets.
Three months later, I finally do not need weekly blood work. Three months later, I have three more months of getting blood work monthly to ensure no cancer has grown.
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