Family fears consolation

The Joys and Fears of Raising a Daughter With Turner Syndrome

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themighty.com

February is Turner Syndrome Awareness Month. Here is our story. My daughter has Turner syndrome (TS) which is a non-inheritable genetic disorder that affects one out of 2000 females.

Some of the symptoms include short stature, ear problems, auto-immune disorders, and heart defects. This is what Turner syndrome has meant for our family. 1996 My 6-week-old daughter is lying unconscious on a hospital bed.

The single bed dwarfs her while wires and tubes are connected to many parts of her body. Medical equipment lines the wall behind her bed measuring her heart rate, oxygen levels, pulse, urine output and more.

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