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The 'Holland Moments' of Parenting a Child With a Rare Condition

If you are a parent of a child with a disability or a rare disease, you’ve probably heard the poem Welcome to Holland. By the 10th time someone read it or mentioned it to me, I probably rolled my eyes.

I’ve never been much for the schmaltzy and possess a healthy level of cynicism. Plus Welcome to Holland is a bit dated as our views on disability have changed since it was written in 1987.

Nevertheless, I’ve been thinking about Welcome to Holland a lot lately, because it examines an experience I have had many times since our boys were born.

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